Health24.com | Opera singer performs with daughter of her lung donor

An opera singer, performing after two double lung transplants has debuted a song she wrote to pay tribute to the immigrant roots of her more recent donor.

Human family

Charity Tillemann-Dick and her lung donor’s 24-year-old daughter, Esperanza Tufani, sang the song together in front of about 200 doctors and medical executives at a Cleveland medical summit on Tuesday. Tillemann-Dick wrote the song, “American Rainbow”, to honour her connection with her donor, a Honduran immigrant who died of a stroke in 2012.

“We are all part of this big human family, and I think transplants show that better than anything,” Tillemann-Dick said. “I breathe because of someone who came to this country looking for a better life.”

Tillemann-Dick was studying opera in Hungary when she discovered she had pulmonary hypertension, a disease that caused her heart to swell to three and a half times its normal size and was likely to be fatal without a lung transplant. After getting new lungs in 2009, Tillemann-Dick had what she calls “a tiny wisp of a voice.” A doctor told her singing high notes would kill her, but she persisted and went through months of therapy before starting to sing again.

Transplanting lungs has recently becoming easier, and a previous Health24 article describes how a new method could help keep lungs outside the human body for over 12 hours without significantly harming recipients’ chances of survival.

Second set of lungs

Year later, Tillemann-Dick’s body rejected her transplanted lungs, an experience she calls the most “devastating thing that’s happened to me”.

Tillemann-Dick expected to die, but in 2012 she received a second set of lungs from Tufani’s mother, whose lungs turned out to be a better match. Tillemann-Dick’s voice recovered quickly, and her debut album, “American Grace”, topped Billboard’s classical charts in July 2014.

‘No regrets’

Tillemann-Dick wrote a letter to Tufani, thanking her for her mother’s lungs. Ten months later, the two got in touch through a mutual acquaintance and became fast friends. Tufani, a Chipotle restaurant manager who aspires to become a singer, said it was tough for her at the time to decide to donate her mother’s lungs, as she had lost touch with her mother after her parents got divorced.

Today, Tufani has no regrets.

“I always wanted to sing with my mom, but I didn’t have that relationship with her,” Tufani said. “Getting to do that through Charity, it’s amazing. She doesn’t really realize how much of an impact she’s had on my life.”

Image credit: iStock

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Conjoined twins survive gruelling journey to separation

The one-week-old baby girls had to go on a 15-hour journey on the back of a motorbike.

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Health24.com | Meet the man who can’t stop laughing once he starts

They say laughter is the best medicine. They also say there’s nothing better than a good cry. But what do you do when you have no control over these displays?

Pseudobulbar affect (PBA), also known as emotional incontinence, causes people to laugh and/or cry uncontrollably at any given moment. People who suffer from the condition find themselves reacting this way, even though there might be little or no trigger.

A degenerative condition

Scott Lotan is your average family man – husband, father of two beautiful children and lover of pugs. What makes him different from the average family man, though, is that he suffers from PBA.

PBA is the result of brain injury or a traumatic neurological condition. In Lotan’s case, PBA is the result of multiple sclerosis (MS), a degenerative condition where the central nervous system and the brain are affected.

Because MS damages or destroys the protective fatty layer that covers the nerves, suffering from this condition may result in several secondary conditions, and PBA is one of them.

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PBA or depression?

Depression is a secondary condition that people with MS may suffer from.

People may confuse suffering from PBA as depression, because both conditions involve emotion. PBA Info, however, lists a number of distinct differences to tell the two conditions apart:

  • In PBA, there is a neurological condition or brain trauma, while in depression there may not have been any brain trauma or neurological condition.
  • PBA sufferers have frequent, random outbursts of laughing fits and/or bouts of crying or sobbing, whereas those suffering from depression may or may not experience crying.
  • Those suffering from depression may have control over their crying, whereas PBA sufferers have no control.
  • Those suffering from depression display the emotions they’re actually feeling, so if they are crying, they will be feeling sad. PBA sufferers may be sobbing when they’re not sad at all.
  • Depression may be experienced without any brain or nerve trauma, but in the case of PBA, there will be definite brain or neurological trauma.

Another condition PBA should not be confused with is pseudobulbar palsy, which is much worse than PBA, in that sufferers aren’t able to control facial movements and have difficulty with speech and chewing.

Inappropriate display of emotions

Living with PBA can be extremely challenging and embarrassing, because there are many occasions where the emotion displayed is inappropriate.

A documentary has been produced to raise awareness about the condition, and many sufferers, including Lotan, have been able to share their stories and experiences living with the condition.

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There are a few questions to find out if you or someone you care about may be suffering from the condition. The first would be if your laughter or crying matches the way you’re feeling?

A neurologist would be able to give a proper diagnosis and recommend treatment, which may include taking medication, although there is no known cure for the condition.

There are several conditions that may cause people to develop PBA, including Parkinson’s disease, Alzheimer’s disease and stroke.

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Health24.com | 6 celebs who struggle with bladder control

Incontinence is accidental or involuntary loss of urine (urinary incontinence) or faeces (faecal incontinence).

It is a common condition and it is estimated that one in 10 Americans has continence issues. The problem ranges from small leaks to complete loss of control.

Not incurable

According to a previous Health24 article, incontinence in public is experienced by most people as extremely embarrassing and may have potentially serious psychological consequences.

“Patients who experience incontinence might experience a significant effect on their self-confidence and dignity,” Dr Ulla Botha, a psychiatrist and senior lecturer at the Department of Psychiatry at the Stellenbosch University, was previously quoted on Health24.

“Depending on the level of incontinence, their general functioning might also be affected, as patients often start to isolate themselves and may avoid social interaction to prevent possible embarrassment. This can even lead to depression.”

Incontinence can, however, be treated and managed. In many cases it can even be cured.

A number of international celebrities have overcome any embarrassment and gone public about their experiences with incontinence.

1. Kris Jenner

Matriarch of the Kardashian clan, Kris Jenner has opened up about her bladder problems on Keeping Up With the Kardashians. Jenner is a TV personality, author and former talk show host. She is quite open about her incontinence and admits to wearing incontinence panties.

2. Stephen King

Stephen King is famous for his horror novels, including titles like The Shining, Carrie and The Green Mile. As a result of a protracted urinary tract infection he developed urinary incontinence. Although the problem was solved, he still keeps incontinence products next to his bed just in case. King is 69 years old.  

3. Samuel  Jackson

Famous for a number of box-office hits, including Snakes on a Plane, Star Wars and Pulp Fiction, Samuel L. Jackson developed a loss of bladder control when he was in his 40s. Initially it was a shock but, realising that millions of people have the same problem, he overcame his embarrassment and doesn’t hide the fact that he wears incontinence products on a daily basis – even while on movie sets.

4. Katy Perry

Pop artist Katy Perry Perry suffered from bladder leakage throughout her high school career and regularly had to wear incontinence diapers. After countless failed treatments, it was established that she suffered from a urinary tract infection. When the infection cleared up, she regained control over her bladder. Perry believes the experience has made her a stronger person. 

5. Kate Winslet

The 40-year-old star recently appeared on The Graham Norton Show where she explained that she developed stress urinary incontinence after having three children. Winslet says that she experiences bladder leakages when she sneezes or if she jumps on a trampoline. Most women aren’t as open as Winslet about their incontinence, but the truth is that up to one in every three women suffers from the condition at some point in their lives, according to a study published in Reviews in Urology.

6. Helena Bonham Carter

In 2009 Helena Bonham Carter revealed that she suffered from incontinence after giving birth to her second child. The actress admitted that she struggled during filming of Harry Potter And The Half-Blood Prince. She experienced pelvic-floor problems and lack of bladder control after having her baby and had to wear adult nappies. 

Image credits: Wikimedia Commons

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Ageism In Healthcare And The Danger Of Senior Profiling

We’ve all heard the saying, “age is just a number.” Nowhere is that more important than in the hospital setting. Over the years I’ve become more and more aware of ageism in healthcare – a bias against full treatment options for older patients. Assumptions about lower capabilities, cognitive status and sedentary lifestyle are all too common. There is a kind of “senior profiling” that occurs among hospital staff, and this regularly leads to inappropriate medical care.

Take for example, the elderly woman who was leading an active life in retirement. She was the chairman of the board at a prestigious company, was an avid Pilates participant, and the caregiver for her disabled son. A new physician at her practice recommended a higher dose of diuretic (which she dutifully accepted), and several days later she became delirious from dehydration. She was admitted to the local hospital where it was presumed, due to her age, that she had advanced dementia. Hospice care was recommended at discharge. All she needed was IV fluids.

I recently cared for an attorney in her 70’s who had a slow growing brain tumor that was causing speech difficulties. She too, was written off as having dementia until an MRI was performed to explore the reason for new left-eye blindness. The tumor was successfully removed, but she was denied brain rehabilitation services because of her “history of dementia.”

Of course, I recently wrote about my 80-year-old patient, Jack, who was presumed to be an alcoholic when he showed up to his local hospital with a stroke.

Hospitalized patients are often very different than their usual selves. As we age, we become more vulnerable to medication side-effects, infections, and delirium. And so, the chance of an elderly hospitalized patient being acutely impaired is much higher than the general population. Unfortunately, many hospital-based physicians and surgeons — and certainly nurses and therapists — have little or no prior knowledge of the patient in their care. The patient’s “normal baseline” must often be reconstructed with the help of family members and friends. This takes precious time, and often goes undone.

Years ago, a patient’s family doctor would admit them to the hospital and care for them there. Now that the breadth and depth of our treatments have given birth to an army of sub-specialists, we have increased access to life-saving interventions at the expense of knowing those who need them. This presents a peculiar problem – one in which we spend enormous amounts of resources on diagnostic rabbit holes, because we aren’t certain if our patients’ symptoms are new or old. Was Mrs. Smith born with a lazy eye, or is she having a brain bleed? We could ask a family member, but we usually order an MRI.

My plea is for healthcare staff to be very mindful of the tendency to profile seniors. Just because Mr. Johnson has behavioral disturbances in his hospital room doesn’t mean that he is like that at home. Be especially suspicious of reversible causes of mental status changes in the elderly, and presume that patients are normally functional and bright until proven otherwise.

Last month I hit a new age record at my rehab hospital – I admitted a charming, active, 103-year-old woman after a small stroke caused her some new weakness. She was highly motivated in therapy, improved markedly and was discharged to an independent living center. I bet she will live many more years. When I joked that she didn’t look a day over 80, she winked and told me she had stopped counting birthdays years ago. She said, “It doesn’t matter how old you are, it matters what you can do. And I can do a lot.”

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When It’s More Important To Save A Lifestyle Than A Life – Jack’s Story

Even though I don’t have an outpatient practice, I like to keep in touch with some of my patients after they’ve discharged from the rehab hospital. Jack is one of my very favorite success stories.

I met Jack in a small regional hospital in rural western America. He had been admitted with sudden onset weakness, and during the intake process, accurately described his daily evening cocktail habit. Unfortunately, this led the clinicians down the wrong diagnostic pathway, presuming that alcohol withdrawal seizures were the cause of his weakness (due to a presumed “post-ictal” state).

A brain MRI was unremarkable, and so a fairly high loading dose of anti-seizure medications were started. Poor Jack happened to be very sensitive to meds, and reacted with frank psychosis. Days later he was still not in his right mind, and so a rehab consult was requested for “encephalopathy due to alcohol withdrawal.”

When I met Jack, it was clear on first glance that… [click here to read the rest of the story] or go to this link:

http://cliniciantoday.com/when-its-more-important-to-save-a-lifestyle-than-a-life/

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The Amazing Coincidence That Brought A Physician And Patient Together Across The Country

As the new medical director of admissions for St. Luke’s Rehabilitation Institute in Spokane, Washington, it is my job to review all patient referrals to our hospital. Imagine my astonishment when, while traveling to New Orleans, I received an email about a patient at Tulane Medical Center who was requesting admission to St. Luke’s. This dear lady was from Spokane, but had fallen ill while visiting her family on the other side of the country, in Louisiana.

When I arrived, the patient’s son greeted me. He was pacing the halls, worrying about how he was going to get his mom home. There was only one direct flight per week, and it was scheduled for the next day. He had booked the ticket on Southwest Airlines on a lark.

I explained that I was from St. Luke’s, the facility that he hoped would admit his mom for further care.

He was dumbfounded. “What are you doing in New Orleans?” he asked.

“I’m here on a business trip,” I said, “and I heard your mom needed rehab. I wanted to look in on her and make sure she’s ready to transfer home. I reviewed her chart and she seems to be a perfect candidate.”

He smiled and sputtered that he thought the case managers had just sent out the referral request a few hours prior. “How on earth did you get here so quickly?” he marveled.

I explained that email and digital chart access make a big difference these days and reassured him that his mom would likely be able to catch her flight the next morning.

“I thought this was going to take weeks,” she said. “I was in such a state. I prayed that God would find a way to get me home just a few hours ago, and now you’re here. This must be divine intervention.”

I smiled and briefly examined her, noting a PICC line and Foley catheter. She wrote me a list of “must eats” in New Orleans and explained where I could find the best fried oysters and po’boy sandwiches. Her attending physician then came in, accompanied by a medical resident. The resident explained that I was here from the accepting facility in Washington state.

“This never happens,” the attending stated, matter-of-factly.

“It’s a crazy coincidence. I am the admissions director, and I happened to be three blocks from here when I received an email about this patient,” I said. “I reviewed a copy of your medical records and believe she is an excellent rehab candidate. Because I was right around the corner, I figured I’d facilitate her transfer in person. It’d be great if we could leave her lines and tubes in for the trip. … I’d like to give you my card, in case you have other patients who need rehab in Spokane.”

The attending chuckled as she looked at my business card. “I’m not sure how many others we’ll be sending your way.”

“You never know.”

Dr. Val Jones and patient Patricia Crocker-Fox in Spokane, WA.

She gave me permission to write about this amazing journey, and I had a hospital friend take a photo of us together on her final day at St. Luke’s, next to a full-scale replica of the same Southwest Airlines airplane in which she traveled to us from New Orleans. We use it in our gym to help patients with injuries and disabilities practice getting in and out of airplanes. Southwest Airlines donated it to us some time ago — yet another coincidence!

Stories like these make me glad to be a physician. I love knowing that I may be called upon at any time — wherever I am — to help people in extraordinary ways.

And yes, I did gain about five pounds on my trip. What can I say? I simply had to take my patient’s advice on Cajun delicacies before I flew home!

**This post was originally published on the Barton Associates Blog.**

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