Straight Folk – You Seriously Need To Start Talking About HIV

While we may think that, at this point, we know all there is to know about HIV and what causes it after decades of research, recent data has revealed that there is still a long way to go, especially for heterosexual people.

Newfoundland Diagnostics have recently conducted a study using a sample of 2,504 people, into public awareness and perception of HIV ahead of HIV Testing Week this week. Alarmingly, their research found that many people aren’t aware that anybody can get HIV and have never been tested.

According to the researchers, over one million straight people in the UK believe that they are immune to HIV. This is exceptionally alarming, given that UK Government figures show that almost half of HIV cases are heterosexual people.

73% of straight Brits have never tested for HIV

The study also found that over a fifth (21%) of heterosexual Brits believe that they are unlikely to contract HIV, leading them to not get tested. Additionally, one million Brits believe that they are ‘immune’ to the condition.

Other reasons for heterosexual people not testing for HIV include never having unprotected sex (18%), not having access to an HIV test (4%) and not being bothered to test for HIV (3%).

Overall, this research exposes a sore lack of education within the UK around HIV and how it is contracted and manifests. Newfoundland Diagnostics notes that this ironically echoes the infamous tombstone ads of the 80s which said: “don’t die of ignorance.”

Frederick Manduca, co-founder of Newfoundland Diagnostics, said: “Whilst testing does seem to be increasing in the long-term, these findings reveal there remains a substantial amount of ignorance towards testing and its importance amongst heterosexual people.”

Who can get HIV and how is it transmitted?

Despite much of the focus surrounding HIV being on gay, bisexual, and men who have sex with men testing for HIV, far more people could contract the disease. Anybody who has unprotected sex, exchanges bodily fluids or shares needles should regularly test for HIV. Anybody can get infected with it, regardless of sexuality, race, gender, sex, or age.

HIV is found in the body fluids of someone living with HIV. This includes semen, vaginal, and anal fluids, blood, and breast milk. In the UK, according to Newfoundland Diagnostics, the most common way of getting it is through anal or vaginal sex without a condom. It cannot be transmitted through sweat, urine, or saliva.

How do I test for HIV?

All HIV tests will check your blood for any blood-borne diseases and are available as part of a regular STI check up. You can visit a GUM clinic or sexual health practice for a test, or you can test at home with a self-test such as Newfoundland Diagnostics’ HIV test.

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5 Things HIV Doctors Want Everyone To Be Doing

Of the estimated 1.2 million people with HIV in the United States, 13% are unaware they have it. This is despite ongoing scientific advancements enabling people with HIV to live long, healthy lives, and a vast increase in frank and candid conversations from people in the public eye, like Billy Porter and Jonathan Van Ness, to dispel the stigma surrounding the virus.

What gives?

“I still think there is a lot of stigma surrounding HIV and prevention, and I also think there’s still a distrust from certain communities of the medical establishment, lack of education and comfort with providers,” said Dr. Antonio E. Urbina, medical director at the Mount Sinai Institute for Advanced Medicine and a professor of medicine at the Icahn School of Medicine at Mount Sinai in New York City.

“We have made strides in terms of decreasing the number of new infections, but we still need to demystify the tools we have to prevent it by universally adopting a more sex-positive attitude,” Urbina told HuffPost

Feeling comfortable with and empowered by your medical provider to speak openly about your status, ask questions and seek treatment are crucial tools in the fight to eradicate HIV and treat those living with it. But there are plenty of other things infectious disease doctors recommend that people do in order to keep themselves safe.

Know your status.

The most obvious-sounding one is also one of the most important. It’s not only for the benefit of your sexual partners and for the betterment of your health but also to ensure you’re getting the correct and most effective treatment possible.

“When a person is aware of their status, they can engage in informed conversations with health care providers to explore personalized prevention strategies,” Dr. Taimur Khan, associate medical research director of the Fenway Institute in Boston, told HuffPost.

“Regular testing facilitates early detection, which can lead to early treatment, reducing the risk of HIV transmission and contributing to better health outcomes. It also opens the door to other preventive measures, like PrEP, which can be tailored to individual needs and circumstances.”

Inquire about new treatment options.

PrEP, or pre-exposure prophylaxis, is already a widely known method of protection and prevention. When taken in pill form as prescribed, PrEP reduces the risk of getting HIV from sex by 99%.

It also helps to maintain the U=U, or undetectable equals untransmittable, status. When your viral load is undetectable, it’s also untransmittable. When someone has HIV and is taking antiretroviral therapy (ART) to maintain their undetectable status, they cannot spread the virus. Since PrEP assists in preventing someone from contracting HIV even if they are exposed to it, it also helps to protect the wider community.

But not everyone feels like taking a pill every day. For those people, it might be worth inquiring about other options.

“We already have approved a long-acting bimonthly injectable called Apretude,” Khan said. “That might be able to option the window for capturing the most vulnerable populations or most impacted. It’s widely available and FDA-approved, most insurances will cover it. It just hasn’t really scaled up significantly because it’s still new, and I also think it takes a bit of infrastructure at a site or clinic to have a flow and process for getting it approved and actually doing the injections.”

Practice safe sex and injection.

Every doctor we spoke to stressed the effectiveness of consistently wearing condoms when engaging in anal, vaginal or oral sex, and for those who inject drugs, participating in needle exchanges or ensuring clean needles are used. For more information about syringe services programs, click here.

Prioritise being in a safe space.

It’s just as important to feel empowered to discuss your sexual health with a partner as it is with your health care provider.

“There should be no shame or judgment surrounding sex. This is one of the reasons transmission continues to occur,” said Robin Hardwicke, a professor of obstetrics and gynaecology at UTHealth Houston who specialises in infectious diseases. “Sex is a natural part of human life; an expectation. Be free to have sex, but be responsible enough to protect yourself and your partner.”

“Find a provider or clinic where you feel comfortable talking about these issues,” Urbina added. “If you start to talk about this and you get shut down or they’re not responsive to your needs, you should go somewhere else until you really feel comfortable. If you feel you have to hide or not disclose something so important, it’s not a fit.”

Treat HIV as part of your overall health.

Finally, it’s important for both medical professionals and their patients to remember that they would be better served looking at HIV through the lens of overall health and not just sexual health, Khan told HuffPost.

“The stigma that has long been associated with HIV is being challenged by emphasising a shift from discussing ‘risky’ behaviour to promoting sexual practices that are safe, consensual and enjoyable,” he said. “By addressing HIV as one aspect of a broader sexual health conversation that includes other [sexually transmitted infections], vaccinations, mental health and substance use, the focus is placed on comprehensive care and well-being. This inclusive approach helps to dismantle the blame and shame often associated with HIV and repositions it as a manageable health condition.”

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PrEP Can Prevent HIV Infections, But Most Women Don’t Know They Can Take It

When it comes to lowering your risk of getting infected with HIV, there is one immensely valuable yet grossly underused medication that doctors recommend.

The drug is known as PrEP, or pre-exposure prophylaxis, and is a medication that reduces the risk of someone getting HIV, said Dr. Shivanjali Shankaran, an infectious disease physician who specializes in HIV at RUSH University Medical Group in Chicago.

PrEP is an important HIV infection prevention tool that many folks either don’t know about or don’t think they’re eligible for. It’s estimated that only “about 30% of the people who should be on PrEP are on PrEP and of them in the U.S., only 7% of PrEP users are women,” Shankaran said.

There’s a dangerous myth that women can’t take PrEP, which is probably why use among this demographic is so low. But with 18% of new HIV diagnoses in the U.S. happening in women, prevention is necessary.

We spoke with experts about PrEP and why it’s valuable for everyone — including women. Here’s what they said:

PrEP is a medication that HIV-negative people can use to stay HIV-negative.

PrEP reduces the risk of becoming infected with HIV both via sexual activity and via injection drug use, Shankaran said.

The Centers for Disease Control states that PrEP lowers your risk of contracting HIV sexually by 99% and 74% when it comes to HIV contraction via injection drug use.

“The different studies had varying levels of protection, but most of those were related to how well someone adhered to taking the pills,” Shankaran explained. “So if you took the pills most of the time, if not all of the time, it’s very, very effective — obviously, if you don’t take it, it’s not going to be effective.”

There are currently three options for PrEP in the U.S.; two of the treatments are pills and one is an injectable. Cisgender women are eligible for two of the three treatments, according to Shankaran: Truvada, a pill treatment, and Apretude, which is the injectable medication.

Truvada is one PrEP medication that women can take. (Astrid Riecken/Tribune News Service via Getty Images)

MCT via Getty Images

Truvada is one PrEP medication that women can take. (Astrid Riecken/Tribune News Service via Getty Images)

“The CDC currently recommends that if you’re a cis woman, you take the medication, the Truvada, for example, if it is a pill, you take it every day, and about after about 21 days or so you’re fully protected,” Shankaran said.

For Apretude, the injectable medication, the time it takes for someone to be fully protected is unknown, according to the CDC. This is because the medication has been available for a shorter time, Shankaran said.

“The duration is shorter for men, also [men] can do sort of on-demand PrEP, where you take it if you’re going to have sex,” Shankaran explained. However, taking the medication “on demand” is not currently recommended for cis women.

Additionally, cisgender women cannot take Descovy, the third PrEP medication, which is also administered in pill form. “Because, unfortunately, studies were not done in cis women, and so there was not enough data in the use of Descovy … which is why it’s not approved for that use,” Shankaran said.

PrEP is just one part of a full strategy for people to stay HIV-free.

“The reason I say it’s a strategy because I think the medication, whether it be a pill, or injectable, is sort of just part of it — so, it’s either a pill a day that people can take, or an injectable medication every two months,” said Dr. Oni Blackstock, the founder and executive director of Health Justice, an organisation that works with health care groups to reduce health inequities and centre anti-racism.

But, beyond the pill or injectable, there are additional levels of care someone receives when they start PrEP.

“They’re going to be seeing a provider every few months, they’re going to be tested for sexually transmitted infections that can co-occur with HIV, they’ll be checked for how they’re tolerating the medication, they’ll be counselled on any sort of sexual or drug use behaviours that may be associated with HIV,” Blackstock said.

“So, I just think of it as sort of a bundle of care to help people who are HIV-negative stay HIV-negative,” she added.

A daily pill treatment can reduce your risk of becoming infected with HIV.

d3sign via Getty Images

A daily pill treatment can reduce your risk of becoming infected with HIV.

The marketing of PrEP, along with misinformation, has created the inaccurate idea that cisgender women can’t take the medication.

Through no fault of their own, many cisgender women do not know that PrEP is a medication they can use to reduce their risk of contracting HIV.

“Because PrEP has been historically heavily marketed to men who have sex with men … it really gave the impression that PrEP was not something that … cisgender women could take, and unfortunately, this is sort of reinforced by many health care providers.” Blackstock said, “I’ve heard stories of women saying, ‘Well, my doctor said this is something only gay men take or that I can’t take it if I’m pregnant or if I’m breastfeeding or if I’m trying to get pregnant.’”

(For the record, oral PrEP is safe for use in people who are pregnant, breastfeeding and trying to get pregnant.)

“So, there’s a lot of misinformation also from health care providers as well,” Blackstock noted.

The misinformation combined with the lack of marketing toward cisgender women has led to a low uptake of PrEP among this group, Blackstock said. Black women, who account for half of new HIV infections in women, are on PrEP even less.

When asked why this is the case, Blackstock said “it’s multifactorial.”

“Some of that has to do with women, particularly Black women thinking that they may not be at risk, so sort of low perceived risk of HIV, but it’s also because a lot of women may not be aware of PrEP because it’s something that health care providers aren’t talking to them about or offering.”

Additionally, it may have to do with health insurance coverage. “We know that the South is the epicentre of the HIV epidemic [and] there are many states in the South that haven’t expanded Medicaid, so for various reasons, Black women may not have access to PrEP,” Blackstock added.

Shankaran noted that for uninsured or underinsured people, there are still options.

“You can get access to medications, either via the CDC, they have something called a Ready Set PrEP program, as well as the manufacturer, they have programs where they can help you get medications, even if you are uninsured,” Shankaran said. (Keep in mind that everyone won’t qualify for these programs.)

PrEP is a powerful tool that puts women in control of their health.

You can take PrEP for as long as you are at risk of contracting HIV, Shankaran said, and you can stop taking it when you are no longer at risk. You can also pick it up again if necessary.

Additionally, you don’t have to go to an HIV doctor of infectious disease doctor for the medication. “Your primary care physician can prescribe it, some places family medicine [can prescribe], adolescent clinics [and] some places GYN clinics will prescribe it,” Shankaran said.

What’s more, you’re given peace of mind when you properly take PrEP.

“The really wonderful thing about PrEP is that it’s user-controlled, a woman can take it with or without her partner’s awareness and knowledge — some women may be in a situation where it may not be safe to share with their partner that they’re taking PrEP, but it allows a woman to protect herself,” Blackstock noted.

And just to underscore this point: PrEP is for people of all gender identities and sexual orientations and is an immensely valuable way to stay HIV-free.

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RuPaul’s Drag Race UK Star Charity Kase Wins Wave Of Praise For Candid Chat About HIV Status

BBC

Charity Kase in the Drag Race work room

This article contains spoilers for this week’s instalment of RuPaul’s Drag Race UK.

RuPaul’s Drag Race UK star Charity Kase won praise from viewers after a candid discussion in this week’s episode, in which she spoke about her HIV status.

Speaking to competitor Kitty Scott Claus in the work room this week, Charity – known for her surreal style of drag – was asked what got her started in the artform.

Charity then explained that she got into drag as a way of dealing with “dark times” that she’d been through in her late teens.

I moved to London when I was 17 and then when I was 18 I was having a good time and I was on the scene,” she said.

“But then I ended up contracting HIV and it was kind of really hard for me to process that at 18. I was still a child, do you know what I mean?

“Six years on I’m still living with the after effects of this one night where this guy took advantage of me.” 

BBC

Kitty Scott Claus and Charity Kase during this week’s Drag Race UK episode

Charity also shared that she has received abusive messages on dating apps in the past when she has disclosed her status, adding: “The trauma of getting diagnosed positive really comes from the stigma of HIV and it’s really sad that’s such a thing.”

“I take three tablets a day and I live a normal life expectancy, and I am undetectable, that means that the virus cannot be passed on from me,” she said in a confessional. “These are major, major steps towards controlling the virus.”

BBC/World of Wonder/Guy Levy

Charity Kase on the Drag Race runway

After the episode debuted, Charity received a wave of support from viewers who applauded her for helping destigmatise HIV:

Charity was also praised by the organisation the Terrence Higgins Trust, who tweeted: “It’s amazing to see @thecharitykase using her platform on @dragraceukbbc to educate people on the reality of HIV today.

“It’s so important to know the facts on HIV and challenge attitudes towards the virus that are stuck in the 1980s. HIV has changed. Tell Everyone.”

After the episode aired, Charity wrote on Instagram: “Thank you to @dragraceukbbc for the opportunity to share my story and to @thtorguk for all of their support and work they do.

“I wanted to open up on this platform to hopefully educate and help some people watching. The best way to combat stigma is through education.”

Thursday night’s instalment saw the impromptu exit of Victoria Scone, who sustained a knee injury during the first episode of the series, and was forced to bow out early on medical grounds.

Victoria made history as the first cisgender woman to compete on any series of Drag Race, and it’s expected she’ll make a return if Drag Race UK is commissioned for a fourth season.

At the end of the episode, Veronica Green was sent home after a lip sync against Vanity Milan.

Veronica previously competed on the second season of Drag Race UK but, like Victoria, had to leave the show halfway through when she contracted Covid-19.

RuPaul’s Drag Race UK is available to watch now on BBC Three.

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Billy Porter Opens Up About Living With HIV For Past 14 Years

Billy Porter has spoken for the first time about living with HIV for the past 14 years. 

In a piece for The Hollywood Reporter, the Pose actor opened up about receiving the diagnosis in 2007, saying he has been “living it and being in the shame of it for long enough”.

“There’s no more stigma – let’s be done with that. It’s time,” he said.

Santiago Felipe via Getty Images

Billy Porter 

“The shame of that time compounded with the shame that had already (accumulated) in my life silenced me, and I have lived with that shame in silence for 14 years.”

Billy said he told few people about his diagnosis, not even his mother, adding that he wasn’t certain if he could “have a life and a career” if “the wrong people knew”.

“It would just be another way for people to discriminate against me in an already discriminatory profession,” he said. “So I tried to think about it as little as I could. I tried to block it out.”

He said the Covid crisis made him confront his trauma, and he eventually “ripped the band-aid off” and told his mother on the day of filming the final episode of Pose.

FX

Billy Porter as Pray Tell in Pose

However, Billy used his character in Pose – ballroom emcee Pray Tell – as a proxy, saying: “I was able to say everything that I wanted to say through a surrogate.

“As a Black person, particularly a Black man on this planet, you have to be perfect or you will get killed. But look at me. Yes, I am the statistic, but I’ve transcended it.”

Billy also explained that his viral load is undetectable thanks to “amazing” developments in HIV medication, which also means that he cannot transmit the virus. 

“This is what HIV-positive looks like now. I’m going to die from something else before I die from that.

“My T-cell levels are twice yours because of this medication.”

He added: “I’m doing this for me. I have too much shit to do, and I don’t have any fear about it anymore.

“I don’t care what anyone has to say. You’re either with me or simply move out of the way.”

Dave J Hogan via Getty Images

Billy at last week’s Brit Awards

Billy is one of the main stars of hit US drama Pose, which depicts New York’s ballroom scene of the 1980s and ’90s against the backdrop of the HIV and AIDS crisis. 

The show broke fresh ground for queer representation upon its 2018 premiere by featuring television’s largest-ever cast of transgender actors in series regular roles, as well as the largest LGBTQ cast for a scripted series.

In 2019, Billy also became the first gay Black man to win an Emmy for lead actor in a drama for his portrayal of Pray Tell. 

Earlier this year, it was announced that the third series of Pose would be the show’s last, and consist of seven episodes. 

Read Billy’s full piece over at The Hollywood Reporter, or in the current issue of the magazine, on sale now. 

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As HIV Testing Rates Rise Thanks To Gareth Thomas, Here Are 5 Myths That Still Need Busting

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